Comments for McCleary MRSA Prevention

Comment on Let’s talk about MRSA victims I know by Stephanie

Stephanie — Fri, 04 Jun 2010 22:55:41 +0000

My mother had her knee replacement removed do to a Septic infection that the Dr. in Chicago said she shouldnt of even lived through. She has the unbendable knee replacement that she recieved in April then she ended u with the same flesh eating infection in that knee again. Had to return to Chicago to once again have surgery 5 weeks later. Again they removed the dead tissue and sent her home 5 days after surgery and they used disolvable stitches and steri-strips and guess what here we ago again 4 weeks later it is oening at the site and is currently tunneling again and is at 1cm deep. She still can’t walk and is still bedridden since the surgery. All this time with Physical Therapy and still nowhere. That specific limb isnt the easiest to work with as it is the bendable. So good luck to the fellow you met as it has been a long haul and still is.

Comment on MRSA Sepsis or Heart attack? by Kathy

Kathy — Wed, 31 Mar 2010 14:38:22 +0000

Denise,
Please accept my condolences about your Dad. It is devastating to lose your beloved parent, but doubly so when it is because of a preventable infection.
I am so sorry for your loss. Please extend my condonlences to your entire family.
Kathy Day

Comment on MRSA Sepsis or Heart attack? by denise

denise — Thu, 25 Mar 2010 22:21:46 +0000

my daD PASSED ABOUT TWO WEEKS AGO WITH THE SAME THING.HE WENT IN THE HOSPITAL FOR A SIMPLE THING AN NEVER CAME OUT.

Comment on The High Road to MRSA Prevention by Lori Nerbonne

Lori Nerbonne — Fri, 05 Mar 2010 18:24:22 +0000

The Class Action route may be the only way to force hospitals to do the right thing. We screen for AIDS, Hepatitis, TB, breast cancer, cervical cancer, etc, etc…..and these diseases kill far fewer people.

In opposing hospital infection reporting when our reporting law was proposed (it passed in 2006 but we still have no report), hospital administrators and hospital association lobbyists repeatedly pointed the finger back at patients with their claims that hospitals can’t possibly be responsible for all these infections: “Many people come in with MRSA already!” were their chants.

Well then, lets let them have it their way: if they know that patients are bringing it in to their facilities, then aren’t they being negligent by failing to screen people before admission? Wouldn’t they be negligent if they didn’t screen for AIDS if they knew that a lot of people in the community were carriers? How about TB? How is MRSA any different? The only way to tell if they’re bringing it in is to screen for it.

Instead, they are allowing thousands of people to be admitted to the hospital as MRSA carriers, and essentially spreading it around to other patients and health care workers, making people sicker or worse; causing their untimely death. Then the patients and workers who it is transmitted to are bringing it back out into the community, or transmitting it at other healthcare facilities.

It’s like water pollution; hospitals are knowingly allowing MRSA to come into the hospital, and then ‘dumping’ backout into their communities.
Without screening, there is no way to get a handle on who has it, how much there is or how to contain it.

And people are dying.

Comment on Anniversary of John McClearys death by Lori Nerbonne

Lori Nerbonne — Fri, 05 Mar 2010 01:11:52 +0000

Kathy,

I just visited your site and noticed the beautiful yellow roses….you’re obviously a special daughter to both your mom and dad.

Thinking of you and hoping you’re getting some R&R,

Lori

Comment on Forums by peter lester

peter lester — Fri, 12 Feb 2010 20:26:17 +0000

@Kathy
Hi, Kathy. It seems unbelieveble that MRSA detection has not been mandated. I am meeting with the principals of a company that purportedly has a composition [cost effective treatment]that will prevent and / or eliminate MRSA bacteria. From what I have read, if there is no standard to comply to, it seems hospitals, nursing homes, rehab centers, etc. will have no sense of urgency to use such a solution. I would appreciate your emailing me so I can learn more about what is / is not going on to legislate testing / screening / prevention of MRSA. My email is plester111@gmail.com Thank you, Kathy.

Comment on Maine Quality Forum Decision, LETS DO A STUDY by peter lester

peter lester — Fri, 12 Feb 2010 19:15:50 +0000

I also had a relative contract and die from MRSA. I’m meeting with a group next week that claims to have a cost effective treatment for preventing / eliminating MRSA just about anywhere. Let me know how your test went or are going with BioShield, or anything else you may encounter. Thank you, Peter

Comment on Let’s talk about MRSA victims I know by Kathy

Kathy — Sat, 30 Jan 2010 14:40:28 +0000

Lana,
I haven’t heard from you for a long time. Of course I remember you. I am so sorry to hear that you continue to have chronic MRSA related problems. It is a despicable, tenacious and pervasive illness that never quits.
I have met so many victims, all ages, all backgrounds, from all over the country. I received a letter just last night from the frightened mother of a young adult who has serious MRSA. I spent yesterday afternoon in the ER with a nurse friend who has it and is sick.
I am adding a link to a an article about the Vinalhaven, ME outbreak. I just love how the powers that be (CDC) minimize the impact of MRSA. I do understand that it is important to avoid panic, but a certain level of panic is important so people educate themselves about the seriousness of the infection. Those victims may suffer terribly if they have to go into the hospital for an invasive procedure. Nobody tells them that part.
My husband saw Etta James in concert in DC. I will keep her in my thoughts.
I have forgotten your partner’s name but please give send my regards. Perhaps we will meet again at another MRSA Prevention event. Are you part of the Consumers Union?

Comment on Let’s talk about MRSA victims I know by Lana

Lana — Sat, 30 Jan 2010 06:19:08 +0000

And you met me! In DC at the pres conference on Capitol Hill…. I almost lost my life to this disease 2 years ago after gallbladder removal. I went undiagnosed for 2 weeks, and at that time had become septic, had multiple abdominal abscesses, liver failure, kidneys were going, lungs collapsed, heart was going wonky, plural effusions, Disseminated Inter-vascular Coagulopathy (DIC), and on and on….

Life still isn’t the same. I’m in chronic pain from the damage that was done to my abdominal wall. My liver isn’t right. My feet - well they have neuropathy…. I catch every bug that I encounter now. I can’t keep any food in my stomach, and it hurts a lot even when I do…. I can’t work anymore and my partner lost her job, she we rented our house and moved to a place where we don’t have to pay as much a month. We are on the brink of financial disaster…. My life isn’t the same, and I don’t believe that it will ever be “normal” again.

I want to see a victim’s compensation fund to help people like me deal with the financial fallout of MRSA. I helped get more money appropriated for infection prevention in my State, which I am happy about because it will save lives. But I also want to see something done to help the survivors and the families of those who don’t survive. Tort reform has almost killed any chance of recovering through a medical malpractice suit, and often victims are too sick to go through a lengthy legal process after the infection. Hospitals will only clean up their act when they have to pay for these mistakes.

Thank you for all that you do. You make a big difference in the lives of so many people and I am personally grateful.

Also, please keep Etta James, the legendary blues singer, in your thoughts and prayers - she is hospitalized with MRSA.

Comment on MRSA Sepsis or Heart attack? by Traci Hord

Traci Hord — Tue, 26 Jan 2010 02:06:03 +0000

I agree with you and no worries as to the discouragement…I too am making this my passion with the hopes of saving her. They moved her to a rehab facility today which we believe was not in her best interest. Her pain is great and we…who also are not doctors…believe the MRSA may have settled into her bones. I really appreciate your website and guidence to all of out there with this challenge Kathy…your Dad would be very proud. Thank you friend…